Ottobre 4/2011 - 14 Cranberry

I don't often buy clothing for my girls.  It has to be a really, really good deal or an immediate dire need.  I bought this one dress at Sears for $1.50 in their clearance section that I really love and put the bear cub in pretty much every time it comes out of the wash.

She's been wearing it for some time now and has recently jumped a growth curve so it has gotten quite short on her.  You can't really tell just how short in these pictures, but I know it's not long until I won't be able to have her in it any more.

I decided to make her another one, but in patriotic colors.  I started with the Ottobre pattern 4/2011-14 and made a few changes.  I redrew the front yoke to be larger and split into two colors.  I redrew the back to be split the same way between the two colors.  I removed the large bow and added trim to the bottom of the dress all the way around.  I added a belt and ties and a small bow. Here is what I ended up with.

I think it turned out really cute, but Q thinks that the white fabric with the stars is too busy.  I bought fabric for two patriotic versions, the next one more red based than blue so there will be another one shortly.  I don't think I made it long enough.  It is about an inch longer than the one above and I think it will be outgrown way too quickly so I'll be adding more length to the bodice and skirt in the next version.  I also still need to try it on the bear cub so it may need further adjustments.  Overall, despite the lack of enthusiasm from Q, I'm super pleased with how it came out.

Ottobre 4/2011 - 5 Viviella

I planned this dress out a months ago for the bear cub at school.  She needed clothing that she could wear with a shirt underneath and a sweater over her since it was so much colder on the bus and in the classroom than at home and outside.  I ended up not making it because I was intimidated by the idea of shirring.  Since I have since mastered shirring and my backup machine is set up to do that right now, I figured I would knock this one out.

I had to bribe the bear cub to sit still so I could take pictures of her.  The fabric is a very fine corduroy that is perfect for this.  I made the 80 and original drew the pattern to be the length of a 92, but when I cut it out I cut out an extra four inches in length so that the nerdlet could wear it and the bear cub could likely get a couple of years of wear out of it.  It currently comes down halfway down her calves, but I'm okay with that.  Oddly, the nerdlet wouldn't try it on this time.

I really like this pattern and if I had any more fine cord in my stash, I'd likely make a few more in a length that is more appropriate for running around.

More bibs

So now I have 3 sizes of bibs that I make:  Newborn - 6 months(16-20 inch chest), 18-24 months(22-24 inch chest), and 24-36 months(24-26 inch chest).

I was/am still using the newborn sized bibs on my 3 girls, they are a little snug on Darth Baby and a little short on the nerdlet, but still wearable and functional.

As I wrote in my previous bib post, my cousin's granddaughter wears a normal 2T and these little bibs were a little snug on her so I made a slightly bigger pattern for her.  Since the smaller of the two fit her well, I made a bunch more, both for my girls, her, and a couple for a friend that is going to have twins.

These bibs were made from 13 inch wash cloths from Costco (12 for less than $8.00), and I'm considering picking up another package because while these bibs are a lot of work for just a bib, they really are great.  I made what felt like miles of yellow bias tape for these bibs and the nerdlet asked me if I was making Big Bird.  I love that she thinks that I can just make anything that pops into her head.

For those that think that they have husbands that are supportive of their craft, I have this little story for you.  Q knows that I really dislike making bias tape and he always asks how he can help me when I start the process.  This time Q said that I should just show him how to make it so that he could make me a bunch in every color and not have to worry about it anymore.  He offered this when he sees how long it takes and what it entails (since I do almost all of my sewing and cutting in the kitchen in his presence).  I thought that was really sweet of him.

I'll leave you with a picture of the nerdlet in the big she picked out for herself, which is clearly a bit big (her chest measurement is under 19 inches).

The Newest Family Member and a Bad Dog Mom Confession

Introducing Kyra (pronounced K ear rah).

Before this new addition, our family consisted of Q, me, the three girls, two dogs (Ally - 14 1/2 and Suki - 9 1/2), and four cats (Jasmine - 13, Misty - 12, Kit Kat - 11, Snickers - 11).  We have a full house, but Ally is a golden retriever and I've always said that I wanted to get a puppy well before it was her time to go.  I was still planning on waiting until December (after a trip) to get a new dog and I wasn't planning on such a young puppy.  However, a friend was caring for a stray that had puppies that needed homes fairly quickly and so Q agreed to up our schedule.  

Kyra is quite smart.  Today is day three at our house and she's already learned her name and is taking really well to crate training.  She has got a great temperament and is great around her new siblings, both human and feline.  My two dogs haven't been that friendly.  Ally avoids her and gets up and moves whenever the puppy comes near her.  Suki isn't that bad, but after spending even a little time with Kyra, she will get up and start loving on Ally, licking her face and nuzzling her.  It is still early in their relationship so we'll see.    I picked up Kyra from my friend's house and took her straight to the vet to be checked out before I brought her home.  She was 3 pounds almost exactly (the runt by far of the litter) and has a heart murmur and intestinal parasites.   They were going to run more tests on the fecal sample, but I don't know when I'll get that info back.  

My friend told me the mother was a rott mix, but the vet says she is a shepherd mix and the puppy is a shepherd boxer mix.  Here is the picture I have of her mom. 

Like my Ally and Suki, Kyra has a white spot on her chest and that just makes me happy.  We call Suki's her floppy dog spot because if you scratch her white spot, she relaxes all her muscles completely and becomes floppy.  

Darth Baby and Kyra have fallen hard for each other and they never seem to be more than 3 feet apart unless Kyra is in her crate.  You'll notice that Darth Baby will even ditch her favorite stuffed animal Pooh Bear for the puppy.  Darth Baby also likes to strip her clothing and shoes off at the first opportunity.  I don't let the girls go outside unless they have shoes on and because she doesn't want to not be able to go out with me when I take Kyra out to potty, Darth Baby's shoes no longer voluntarily come off.  The first thing she did this morning was to yell for 'Ally', which is what she is calling Kyra.  When she found her, she immediately started yelling, "Shoe! Shoe!"  We even caught her stark naked with just her shoes on shortly after returning to the house after mass this morning.

The nerdlet and the bear cub also seem really pleased with her, though the bear cub is a little jealous and comes to Q and I to get more hugs when Kyra is near us.  She has said 'Kyra' which is a hugedeal because she is still mostly non-verbal.

On the confession side, Ally has always had an issue with hair loss.  When my mom was diagnosed with psoriatic arthritis, we joked that that Ally must have gotten it from her grandma.  Over the past couple of years, she has lost more and more hair and more and more weight.  This has coincided with slowing down, too.  I assumed it was old age and didn't much worry about it.  This past week she got some sores on her head and I was worried that she was hurting herself, so I took her in.  The sores turned out to be pressure spots, similar to bed sores, from where she leans against the sliding glass door, but that isn't what this is about.  When they weighed her I was shocked, she was under 40 pounds (at her heaviest she was 78 pounds and ideally around 65).  Her bones stick out and I assumed that it was because of the arthritis and age;  I had no idea that she had lost that much weight.  The techs treated me like I was intentionally starving her and I don't blame them, but if anything I have been feeding her more than I ever had, in both dog food and human snacks.  The vet told me that it was obvious that she has a metabolic disorder.  They are doing a chemical work up to see what is going on, but I feel just horrible.  I left the vet and burst into tears when I started the car and bawled the whole way home.  I've doubled her food intake (giving her the same amount in the morning and evening, adding two additional meals, and giving her daily snacks) and I should hear the results this coming week.  

On the plus side, I had asked for some pain meds for her on the bad days where she has a hard time moving around or is acting grouchy with Suki.  The vet prescribed Rimadyl and gave her one there.  When we arrived home, Ally leaped out of the van.  Ally stopped taking stairs before Darth Baby was born and I've been lifting her in and out of the van since we got it.  Talk about a great pain killer.  I think I'll be giving it to her in halves because I'm afraid she'll actually hurt herself.  

I'm not going to post a current picture of Ally because I'm truly ashamed at what she looks like now, but I have a picture of her when I first got Jasmine and she mothered her, giving her tongue baths and carrying her around in her mouth like she was her puppy that I found recently.

Cauliflower Pizza Crust

One of my fellow mommies of a child with Ds posted a recipe for a pizza crust made of cauliflower.  My niece is super picky and loves pizza so I thought that maybe I would use this to get her to eat something without a hassle during her weekly visit.  I also was super curious about how you could possibly make something like cauliflower into a pizza crust.

First, I took a fresh head of cauliflower and shoved as much of it as I could into my microwave vegetable steamer for 5 minutes on full power.  This resulted in fully cooked cauliflower that wasn't mushy at all.  I put that in the food processor and pulsed it until it was uniform and small.  I used 2 cups worth (double the recipe).

 Then I added 2 cups of shredded cheese and 2 eggs and mixed them together in the food processor.  I only had a colby jack mix in the house so that is what I went with.

I spread it in my 14 inch deep dish pan and sprinkled italian seasoning and garlic powder on it and baked it for 15 minutes in my oven that was preheated to 450 degrees.

This is what is looked like when it came out.  It actually looks pretty solid.

I spread pizza sauce on the crust and sprinkled cheese and toppings.  Because my niece is super picky, this is what I went with, but when I make this in the future, it will have a lot more toppings.

 I put it back in the oven at 450 degrees until the cheese was melted and bubbly.  I might try and leave it a little longer next time.

The verdict?  It smells great and all four of the little girls here loved it.  The drama princess, my niece, told me that I could make it for her every week when she visits.  Darth Baby ate two servings.  I think it was a little weird for me but edible.  The crust wasn't a real crust and was more like squished together couscous in texture and taste, but it held together on a fork even if you couldn't lift it and eat it like a pizza.  Considering the difference in healthiness I will definitely be making it for them again (even if not the once a week requested.

A picture of the happy four at the zoo this morning.

Starting School Followup

One of the first things you realize when you have a child with Down syndrome, is that the Ds isn't a big deal.  Your child will laugh, cry, sleep, love, learn, grow, and do everything else than all children do.  What is the big deal about having a child with Ds?  Other people and their prejudices are the real issue.  They are the so-called friends and family that don't realize that a person with Ds is a person and deserves to be treated like any other person.  They are the people who use the 'r' word and refuse to put themselves in the shoes of those they are maligning and put a stop to that hate language claiming that they can use any word they wish and that other people are being just too sensitive and all those same arguments you would hear a member of the KKK use to defend their use of the 'n' word. They are the people in the school system that believe that your child doesn't deserve to learn and be educated with other children.

I've said that I was going to post about the bear cub starting school, but I kept putting it off.  Her actual month-and-a-half of school was great and helped her a lot, but the getting to that point was enormously stressful and I thought that writing about it would bring it all back to mind so I've been avoiding it a little.  I had written about the somewhat painful meetings with the school prior to the evaluation here.

The bear cub with her daddy at the time of her evaluation waiting to schedule her first eye surgery.

The evaluation was interesting.  We went in to the district office and they again didn't have any notice that I was going to be there, but they gave me a name tag anyway and called the therapists who apparently did know I was coming.  The therapist came and I was holding the bear cub's hand so that she would not dawdle or run off.  They asked me if she could walk unassisted.  I have a friend who said she would have been offended already, but I understand that this is a reasonable question since a lot of our kids aren't walking well at three and they also deal with a lot of disabilities and not just Ds.  I let go of our hand and the bear cub kept the speed and walked all the way down the long hall without getting distracted.  When we entered the testing room, they immediately went to work on her.  One of the therapists started testing her while the speech therapist asked me questions about her abilities.  The bear surprised me immensely by showing off.  She showed that she knew things that we hadn't even worked on like opposites and matching.  She stacked the blocks high like she did it all the time (at home she would stack maybe three before pushing them down).  She also used a lot of signs like asking them to dance and then getting up to do so.  She also didn't have an accident and went potty on the little one that they had there (at that point she was just getting to the point of being fairly consistent and I was a little worried about this).  She also came and hugged me around the neck from behind when moving around.  After about an hour of working with them, she was done.  She signed 'all done', hid her head behind a book case, and wouldn't look the therapists in the eyes.  The therapist finished with the questions and we left and I actually felt pretty pleased with how it went.

I tried to contact them two weeks later and the receptionist would not even considering putting me through and told me that they would contact me.  I verified that they had my cell number and that they would call me there.  The next day they apparently called the message number (Q's mostly unused cell number) that I specifically told them not to use and left a message telling me that the eval was done and that they would email it to me.  I didn't listen to this message until later and I never received an email from them.  After another week I called our home school and the phones were all down.  Later that same day, I got a phone call from the speech therapist and special needs coordinator for our home school, Valerie (possibly not her actual name).  Valerie told me that she was calling to remind me of the IEP meeting that I supposedly agreed to the next week.  I explained that I knew nothing of this meeting and that I hadn't even received the evaluation report.  She told me that she would call me back.  She called me back in less than an hour and told me that she had a copy of the evaluation report and would make me one and she could email it to me or I could pick it up at the school.  I told her that I would be more than happy to pick it up and that I was taking the girls to the park and would do so on the way.  She told me to call her in the parking lot and that she would bring it to me so that I wouldn't have to unload the girls.  This amazing woman came to the parking lot and asked to meet my girls and was so nice about it all.  She even asked about having the nerdlet diagnosed (she may have shown a few spectrum type symptoms to her when Valerie tried to talk to her).

The bear cub and her sisters playing around the time of this conversation.

I read through the review while the girls played at the park.  The report was full of errors.  It referred to the bear cub by the name Julia at one point (that isn't her name).  At other points it referred to her as a he.  Throughout the entire report, it was filled with descriptions of a child or children that were clearly not my bear cub.  For example, it said that she was antisocial, violent, prone to fits, and didn't sleep well, none of which is true for the bear cub.  I showed the report to one of  the bear cub's therapists and she stated that it didn't look like any of it was right and joked that for once, it would be the school system that looked like idiots instead of the parents.  I considered using it as leverage for getting her what she needed since they couldn't argue on the basis of a completely untrue report, but when Valerie called me again to make sure that everything was set and asked if I needed anything else, I decided to mention it.  She said she would call the district and let them know and have the report changed.  The district speech therapist called me to ask me what the errors I found were, and I was busy and not feeling particularly inclined to help her, I mentioned a few of the errors and told her that I didn't have it in front of me but that the whole thing needed revision.  She stated that she would do so and email it to me, but again I received nothing.  I actually received the revised document from the bear cub's teacher the day before the meeting and most everything had been changed and was mostly correct.

The IEP meeting went well and I was fairly please with the goals and how they were to be addressed, though with only a short time before school let out, we wouldn't see any measurement of these goals.  Also, the teacher of her class that I liked retired when school let out so next year might be a whole different ball game. I did get a dirty look from my home school's principal when I pulled out the recorder, but I told her that I was under the impression that recording these meetings was standard and they scrambled to find the 8-track recorder so that they could record the meeting also (I exaggerate a little, but the cassette recorder they used was likely the first version and was for sale simultaneously with the 8 track recorders I think).  I was talked out of the school I wanted the bear cub to go to, but mostly because Michelle (actual name), the coordinator for that school, seemed completely uninterested in having anything to do with the bear cub and practically scoffed at my concern to keep her potty trained and not back in diapers.

The bear cub's first school bus ride.

School went well for her.  She brought some new pathogen home from school to enjoy and share with her sister each week and pretty consistently missed Tuesdays due to either diarrhea or fever.  She also seemed to have an accident each week at school.  When I confronted the teachers about this, they explained that because she needed a special potty that it had to be kept in the handicapped bathroom and about once a week it was occupied and they had to wait resulting in an accident.  Since this did not result in more accidents at home, I didn't really worry about it.  The only other big thing that I didn't care for was that they could only have a backwards facing car seat one way because the school bus used going the other way didn't have the seats far enough apart to accommodate the backwards facing seat.  I did like that they had a dedicated assistant (the lady in the picture above) that strapped the bear cub into the car seat and sat with her each day.  

I have the option of having therapy services over the summer through our insurance.  The school won't provide summer school or services until the bear cub shows significant lapsing so she's not getting anything through them this summer.  I've decided to take the summer off in regards to therapy.  I have had appointments two or more times a week pretty much since she was born and I've decided to give all of us a break.  I'm a little worried about the stress of school when it resumes in the fall, but I'm trying not to dwell on it for the time being.

The bear cub a few days ago.

Ottobre 4/2010-19 Again

Just sharing the pictures of the nerdlet in her new outfit, which was much easier to get on her than I thought.  She is still wearing it an hour plus later while she moves around, which is a great sign.  I thought she'd be demanding to be changed into a dress right away.